November 14 2019

Holiday Happening Benefit for Neurofibromatosis Northeast to Feature Santa

By: Rich Hosford

Get into the holiday spirit and help fundraise for those affected by a rare but impactful disease. 


Neurofibromatosis Northeast is hosting a Holiday Happenings Benefit on Sunday, November 24 to support its mission of finding a cure for Neurofibromatosis and supporting those afflicted with the disease. The event will be held at Grand View Farm and will run from 12:30 to 4:30 p.m. The cost of entry is $5 and can be paid at the door or in advance by clicking here


“Enjoy a day of holiday fun!” an invite reads. “Take photos with Santa, make holiday crafts, decorate cookies, win great prizes, and shop local vendors. All proceeds go towards Neurofibromatosis Northeast.”


NF Northeast is a non-profit organization with the mission to find a cure and treatment for neurofibromatosis by promoting scientific research, creating awareness and supporting those who are affected by NF. 


According to the Mayo Clinic, neurofibromatosis is a genetic disorder that causes tumors to form on nerve tissue. These tumors can develop anywhere in your nervous system, including your brain, spinal cord and nerves. Neurofibromatosis is usually diagnosed in childhood or early adulthood. Complications of neurofibromatosis can include hearing loss, learning impairment, heart and blood vessel (cardiovascular) problems, loss of vision, and severe pain.


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